Living with HaemophiliaLiving with haemophilia has established itself as the complete guide to haemophilia and related disorders. Written primarily for affected families, the. book also provides a useful and up-to-date guide for doctors, paramedical staff, including nurses and physiotherapists, and teachers. It explains the inheritance of haemophilia, bleeding episodes and how to control them, safe treatment including home therapy and prophylaxis, and the prospects for a genetic cure. Other coverage includes · Sex and family planning · Childhood with haemophilia · Education and employment · Sports and travel · Previous side effects of treatment including HIV and AIDS Sensitively and clearly written at an appropriate level for those with haemophilia, their families and friends. This book aims to dispel the myths and raise awareness of the realities of haemophilia. It takes a positive approach to physical development and encourages the pursuit of healthy, active and fruitful living. Peter Jones shows how, with the right care, the person with haemophilia can live an active and normal life. He addresses all the questions that those with haemophilia or those caring for them need to know the answers to, with humour and genuine concern. He has worked with those affected by it for over 30 years and this book contains his wealth of experience. "All of those who come into contact with haemophilia should read this book" Journal of the Royal College of Physicians Features include · Bullet pointed lists of dos and don'ts for those caring for haemophilic children · Boxes containing key information · Clear simple drawings showing treatments and exercises |
Contents
Medical Background | 29 |
The causes of bleeding disorders | 49 |
Treatment | 71 |
therapeutic materials | 89 |
home therapy prophylaxis venepuncture | 109 |
Physiotherapy | 139 |
Surgery | 157 |
the developing world | 191 |
Planning a family | 221 |
education and employment | 237 |
Towards a cure | 255 |
Appendices | 263 |
B Products containing aspirin | 291 |
The history of haemophilia | 300 |
E The World Federation of Hemophilia | 307 |
Keeping healthy | 201 |
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Common terms and phrases
abnormal gene ankle anti-fibrinolytic antibodies arthritis aspirin baby bleeding disorder blood products blood vessels body bone bruising called carrier cause centre staff child chromosome clotting factor codeine concentrate cryoprecipitate deficiency dental desmopressin developed diagnosis doctor donors dose drugs early effect elbow exercise factor IX factor replacement factor V deficiency factor VIII Federation of Hemophilia fibrin gene therapy genetic given haemo haemophilia centre haemophilia society haemophilic hepatitis home therapy hospital immune inherited inhibitors injection injury instructions knee liver muscle bleeds needle nerve normal occur pain paracetamol parents patient person with haemophilia philia physiotherapist pill plasma platelets possible pregnancy prophylaxis protect protein recombinant red cells response result severe haemophilia side-effects skin someone with haemophilia sperm splint surgery teeth tissues transfusion treatment usually vein venepuncture von Willebrand disease whilst Willebrand disease womb World Federation X chromosome