Living with Haemophilia

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OUP Oxford, May 16, 2002 - Health & Fitness - 321 pages
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Living with haemophilia has established itself as the complete guide to haemophilia and related disorders. Written primarily for affected families, the. book also provides a useful and up-to-date guide for doctors, paramedical staff, including nurses and physiotherapists, and teachers. It explains the inheritance of haemophilia, bleeding episodes and how to control them, safe treatment including home therapy and prophylaxis, and the prospects for a genetic cure. Other coverage includes Sex and family planning Childhood with haemophilia Education and employment Sports and travel Previous side effects of treatment including HIV and AIDS Sensitively and clearly written at an appropriate level for those with haemophilia, their families and friends. This book aims to dispel the myths and raise awareness of the realities of haemophilia. It takes a positive approach to physical development and encourages the pursuit of healthy, active and fruitful living. Peter Jones shows how, with the right care, the person with haemophilia can live an active and normal life. He addresses all the questions that those with haemophilia or those caring for them need to know the answers to, with humour and genuine concern. He has worked with those affected by it for over 30 years and this book contains his wealth of experience. "All of those who come into contact with haemophilia should read this book" Journal of the Royal College of Physicians Features include Bullet pointed lists of dos and don'ts for those caring for haemophilic children Boxes containing key information Clear simple drawings showing treatments and exercises
 

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Contents

Medical Background
29
The causes of bleeding disorders
49
Treatment
71
therapeutic materials
89
home therapy prophylaxis venepuncture
109
Physiotherapy
139
Surgery
157
the developing world
191
Planning a family
221
education and employment
237
Towards a cure
255
Appendices
263
B Products containing aspirin
291
The history of haemophilia
300
E The World Federation of Hemophilia
307
Copyright

Keeping healthy
201

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About the author (2002)

Peter Jones is a Director at the Northern Regional Haemophilia Service, Royal Victoria Infirmary, Newcastle upon Tyne.

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