Pediatric Hospital Medicine and Pediatric Palliative Care, An Issue of Pediatric ClinicsFor the first time, Pediatric Clinics is devoting one issue to two clinically focused topics: Pediatric Palliative Care and Pediatric Hospital Medicine. Dr. Ottolini has organized her section to focus on a variety of issues of relevant to all pediatricians, but which pose special challenge to the Pediatric Hospitalists. As pediatric care has advanced, children who would not have survived infancy are growing into young adults with complex chronic diseases and dependence upon technology. They frequently require hospitalization to address exacerbation of underlying disease processes and procedures to improve their quality of life. The articles are devoted to patient care challenges of troubleshooting malfunctioning technology, co-managing medically complex patients pre and post-op with surgical colleagues, and the Hospitalist’s evolving role in performing procedures and sedation in this population of vulnerable patients. Also discussed rare strategies to maximize communication with parents, patients and primary care providers during hospitalization, especially for medically complex patients. Dr. Ullrich and Dr. Wolfe Pediatric have worked to bring relevant articles on palliative care to the pediatrician. While life-threatening conditions in childhood are rare, children with LTC account for a high proportion of pediatric hospital care, and about one half of such children die in the inpatient setting. The number of hospital-based pediatric palliative care programs has increased dramatically over the past decade to meet the palliative care needs of hospitalized children including symptom management, facilitation of communication, decision-making and advance care planning support, and coordination of care. Given these considerations, it is evident that the topics of pediatric palliative care and hospital medicine are fitting counterparts for this comprehensive issue. |
Contents
Pediatric clinics of
North america | xvi |
Foreword
| xvii |
Preface | xix |
Shared DecisionMaking About Assistive Technology for the Child with Severe Neurologic Impairment | 641 |
Pediatric Hospital Medicine Role in the Comanagement of the Hospitalized Surgical Patient | 653 |
FamilyCentered Rounds | 663 |
Effective Communication with Primary Care Providers | 671 |
Pediatric Hospitalists Working in Community Hospitals | 681 |
Pediatric Hospital Care for Children with Lifethreatening Illness and the Role of Palliative Care | 719 |
Pediatric Palliative Care Consultation | 735 |
Improving Quality of life in Hospitalized Children | 749 |
Transitions to and from the Acute Inpatient Care Setting for Children with LifeThreatening Illness | 761 |
Adolescents and Young Adults with LifeThreatening Illness | 785 |
Pediatric Palliative Care for Children with Complex Chronic Medical Conditions | 797 |
Interdisciplinary Care | 823 |
EndofLife Care for Hospitalized Children | 835 |
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Common terms and phrases
Academy of Pediatrics adolescents American Academy assessment AYAs baclofen cancer caregivers Center cerebral palsy challenges chil child with LTI child’s children with LTIs Children’s Hospital CHPHM clinical collaboration comanagement community hospitals complex chronic conditions Dana-Farber Cancer Institute decision dexmedetomidine distress dose end-of-life family’s FCRs feeding Feudtner follow-up front matter Gabapentin gastrostomy tube goals handoff Healthcare home health nursing Hosp hospice care hospitalized children improve inpatient intensive care unit interdisciplinary interventions involved life-threatening illness medical complexity medical home mg/kg needs neurologic impairment nutrition opioids outcomes pain Palliat palliative care team parents patients and families Pediatric Hospital Medicine pediatric hospitalists pediatric palliative pediatric palliative care pediatric sedation pediatricians PHM providers physicians PPC team primary care primary care provider procedures propofol psychosocial readmission respiratory role sedation sleep spiritual staff surgical therapy tion tracheostomy transition treatment